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Hello everyone. I can't believe it is April already. Sydney turned 32 last week and Kendall will be 17 yrs old on April 17th!!!!! She absolutely loves singing and karaoke(this is when she is the happiest). We have planned a karaoke party for her on Saturday. For now keeping it as a small group due to her immune system. She had a cardiology appointment today. EKG and ECHO(ultrasound of the heart) was stable. Also had a ton of blood drawn for cardiology and oncology. ( I coun

Quick update: CT scan done on Mar17th Scheduled appointment with Oncologist after CT scan went well. No changes in medications. Kendall has had cold(stuffy/runny nose and cough) for a week or so. No fevers though and she feels good. --- -However the appointment on the 20th with the spleen specialist(hematologist) to go over results was canceled and rescheduled until next month( not our doing). The doctor needed to reschedule until April 17th) her 17th birthday. It seriously b

Hello everyone. Kendall has had a few appointments since my last post. Heart cath was done on February 18th. They went through the right carotid artery on the right side of her neck for the cath. The pressure(s) in her heart are stable and the ECHO looked good. On Friday February 20th the transplant nurse practitioner called and said the results of biopsy came back "mild" rejection. She said they really don't know if the rejection is because the heart is healing from the last

On December 10th Kendall was diagnosed with Influenza A. She was immediately put on tamiflu for 5 days. She had a mild case thank God. Then Quentin tested + for influenza A on January 7th so the transplant team wanted Kendall treated again because of exposure. This time she had to be on tamiflu for 10. days On December 17th we went on our first vacation since the transplant. We went to Nashville Tennessee for Quentin's 21st birthday. A good time was had by all. Kendall had so

We have been in contact with the donors family. They are such beautiful people inside and out. Kendall's heart donor's name is Brady Caproon. Myself and Brady's mom have been texting and writing letters to each other back and forth since last year. This was definitely an answered prayer, that the donor's family would want to know us. I remember the first letter I received from Allisun very vividly. When Sydney opened the envelope to start reading the letter to us, there was a

Ok. Clearly I am playing catch up with all of the most recent doctors appointments.... October 24--Hematology/Oncology specialist Dr. M concluded that this mass/lesion on Kendall's spleen has been there a long time according to other cat scans and MRIs. It started slowly growing in 2024. She said it is a hemangioma-- a benign tumor of the spleen, a non-cancerous overgrowth of blood vessels. -Her recommendation is to do nothing right now. She said some of the reasons for rapid

We weren't completely sure if the infusion was going to happen today or be postponed. On Monday, Kendall started having a sore throat,...

Hello everyone. Hope you are having a great weekend. Wanted to give you the latest updates. Every appointment can last anywhere between...

Kendall's lymph node biopsy in her neck was this past Monday. We are somewhat used to the timing and the frequency of the updates during...

The surgeon was awesome and we really like her as far as her teaching of the function of the spleen, what happens when you have 1/2 of...

Good afternoon. On the previous post I talked about upcoming blood work, PET scan, CT scan Here are results: EBV virus levels April- not...

There has been a lot that has happened between this post and the last one. For this post I will just get right to to the point regarding...

Kendall needed blood work done so we went to a U of M lab in Northville that we go to when she doesn't need to go to Ann Arbor. 1st poke-...

I will start with Oncology: As I said in the last post, the results of a few blood tests are low(but) stable and shows that Kendall's...

On Tuesday Kendall had blood work done and then a doctors appointment. They were pleased that she is feeling better. Some of the blood...

We are so very excited to have a new website that is going to allow us to be more interactive with all of you. A place where you will...

Earlier today, Kendall and I took a simple walk through our neighborhood—nothing fancy, just us and the fresh air. In between her time on...

April 1st, 2025  — a date our family will never forget. It was the day Kendall completed her last chemotherapy treatment . 🙌🏽🎉 After...

Time is flying—and so much has happened this month as we inch closer to a major milestone in Kendall’s healing journey. I always intend...

We’ve received some truly positive updates this month—Kendall’s chemotherapy is working! 🙌🏽 Her scans show significant improvement...