July 21
I wanted to send the recap of June-July's events so far:
June 24 Ultrasound of lymph nodes (neck and abdomen)
--results came back that the lymph nodes were not enlarged. Woot woot
The plan PET scan for 7/7/26 was canceled and rescheduled for 8/6/26. She will continue to get blood drawn to check EBV levels every 2 weeks
EBV levels:
EBV levels (7/1 11,800 and 7/14 5500). The numbers are coming down
7/14/26. Appointment with gynecologist the same day- Appointment went well. No further comment on the details of that.
The transplant team ordered a new medication for her to start and it just came today. It is called Farxiga. It is used for many different things but in Kendall's case it is used to reduce the stress on her heart and reduces the workload that it takes to pump to the right side.
Next blood draw will be on Tuesday the 28th of July.
Quentin has taken her to planet fitness to work out a couple of times. She loves going there with her brother. When it's not too hot outside she goes on a walk in the neighborhood.
This past Friday she has resumed going over her GiGi's house for a sleepover. (Before her transplant this was something they did consistently every week and they would order food and watch movies all night). It's been 2 yrs so I am glad they both can now look forward to their Friday nights again.
Next appointments are: August 6th PET scan and August 11th oncology appointment.
Hope everyone is having a great Summer!!!!!
xoxoxoxoxoxoxoxoxo
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