Infusion completed 9/4/25. Kendall rang that bell for the last time!!!
We weren't completely sure if the infusion was going to happen today or be postponed. On Monday, Kendall started having a sore throat, runny nose and cough. We were in contact with the doctors everyday and they said as long as her symptoms didn't get worse or she developed a fever, she could still get the infusion. Thankfully she never had a fever. Still has some of the symptoms but the sore throat is gone.
Infusion went well. The staff signed and decorated a poster board for her and she rang the bell on the way out the door while everyone cheered and yelled her name. It was such a good feeling and a sigh of relief that this is over and done with.
EBV levels:
Aug 22nd 179
Aug 28th <64 (barely detected)
So after this infusion today we expect it to be even lower than that. The Dr. said it may always be detected in her blood but not active.
Appointments for the rest of September:
12th-----CT Scan, PET Scan
15th-----Heart cath and biopsy
These past few months have been very busy with appointments. Thank you for each and every way you helped us get through it all. We Love and appreciate you so much.
xoxoxoxoxoxoxoxoxoxoxoxo
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