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Hello everyone. Kendall has had a few appointments since my last post. Heart cath was done on February 18th. They went through the right carotid artery on the right side of her neck for the cath. The pressure(s) in her heart are stable and the ECHO looked good. On Friday February 20th the transplant nurse practitioner called and said the results of biopsy came back "mild" rejection. She said they really don't know if the rejection is because the heart is healing from the last

On my last post I stated Kendall had a heart catheter procedure on Friday January 16th. On Tuesday January 20th I received a call from the transplant team stating there was some moderate rejection cells in the heart biopsy and they wanted her to be admitted into the hospital ASAP to begin a steroid regimen. It's crazy because there were no clues looking at her to tell what was going on in her body. So we got to the ER around 3p and this started Day 1 of a 3 day IV steroid tre

On December 10th Kendall was diagnosed with Influenza A. She was immediately put on tamiflu for 5 days. She had a mild case thank God. Then Quentin tested + for influenza A on January 7th so the transplant team wanted Kendall treated again because of exposure. This time she had to be on tamiflu for 10. days On December 17th we went on our first vacation since the transplant. We went to Nashville Tennessee for Quentin's 21st birthday. A good time was had by all. Kendall had so

October 11th--. Our family met with Brady's parents, Allisun and Donavon Caproon via Zoom. We greeted each other with smiles and introductions. From there the conversation just flowed. We didn't have a Q & A with a list of questions because we wanted it to be genuine and not scripted. I asked Allisun to talk about Brady and share some things she had already told me and add anything else she wanted us to know. After that, we asked them questions like: what were Brady's favori

We have been in contact with the donors family. They are such beautiful people inside and out. Kendall's heart donor's name is Brady Caproon. Myself and Brady's mom have been texting and writing letters to each other back and forth since last year. This was definitely an answered prayer, that the donor's family would want to know us. I remember the first letter I received from Allisun very vividly. When Sydney opened the envelope to start reading the letter to us, there was a

Ok. Clearly I am playing catch up with all of the most recent doctors appointments.... October 24--Hematology/Oncology specialist Dr. M concluded that this mass/lesion on Kendall's spleen has been there a long time according to other cat scans and MRIs. It started slowly growing in 2024. She said it is a hemangioma-- a benign tumor of the spleen, a non-cancerous overgrowth of blood vessels. -Her recommendation is to do nothing right now. She said some of the reasons for rapid

I won't overload you and put everything in one post so I will let you know things in the order that they happened to get you caught up. I am literally going to look into Kendlall's patient portal at Mott's to recall everything because it's been a month and half since my last post. PET scan results showed the neck lymph nodes were no longer enlarged and the right side was clear. However, there was still active early stage lymphoma on the left side. Since she is not having any

I just realized my last blog update waa weeks ago and so much has happened. I was hoping to make 1 post with every result but that is...

We weren't completely sure if the infusion was going to happen today or be postponed. On Monday, Kendall started having a sore throat,...

Hello everyone. Hope you are having a great weekend. Wanted to give you the latest updates. Every appointment can last anywhere between...

Good morning everyone. We did not get the biopsy report back last week. The oncologist called us on Monday to give the report. There are...

Kendall's lymph node biopsy in her neck was this past Monday. We are somewhat used to the timing and the frequency of the updates during...

The surgeon was awesome and we really like her as far as her teaching of the function of the spleen, what happens when you have 1/2 of...

Today we had a virtual visit with the radiology team to give recommendations on treatment options for Kendall's spleen. Most of the...

Good afternoon. On the previous post I talked about upcoming blood work, PET scan, CT scan Here are results: EBV virus levels April- not...