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September 23rd

2 minutes ago
1 min read

Good morning all. These last few weeks since the last post have been uneventful which is a good thing.

Kendall has been feeling really good and didn't need to see any doctor in the past few weeks.


The last result of the EBV virus I posted on Sept 5th (5200) was the last one that was drawn. Since she doesn't have any viral symptoms they gave her a break from the every 2 week blood work and she will have it drawn next week.

Upcoming:

-September 29th is the scheduled heart cath procedure. This time they will go through her groin instead of her neck because they will look at both sides of her heart and not just the right side. Also looking at her coronary arteries. This cath procedure is slightly longer than the ones where they are only looking at the right side of the heart. When they check the pressures on the right side of the heart they will be able to see if the medication they started her on is working.(Farxiga). She has to lay flat for 4 hours afterwards before she can go home.


Wear your t shirts next Tuesday if you can. I will send reminders.





 
 
 

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September 5th

Greetings everyone. I have not posted anything since July!! Yikes... Not posting is actually a good thing because there wasn't any bad news report Updates: EBV levels -7/11 11,800, 7/14 5,500, 7/29 29

 
 
 
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June 28th

Very quick update June 26th Kendall had the cardiac cath. After the procedure the cardiologist came in and said the pressures in the right side of heart were higher than they've ever been. The explana

 
 
 

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Hi, thanks for stopping by!

Hi, I’m Cewanda — Kendall’s proud mom and the heart behind this journey. What started as a scary diagnosis has turned into a powerful testimony of faith, strength, and miracles. Through every surgery, setback, and triumph, our family has witnessed the incredible. I created this space to share our story, uplift other families, and remind you that you are not alone. I’m so glad you’re here.

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