Good evening. Hope everyone is doing well. Here are the latest updates JUNE 18 ENT. This was a 6 month checkup appointment. He did not put the scope down her throat this time( She smiled big when the doctor said that). The Dr went over some details from when Kendall saw him 6 months ago. He doesn't want to do an airway procedure because her vocal cords could be damaged and/or there would be a lot of swelling causing her not to breathe and require a tracheostomy that would b

Today was the neurology testing at a U of M center near the hospital. We were there from 8am-230pm. We were able to talk to the psychologist for about an hour so she could gather information and get more of Kendall's history before she met her. Kendall was with the psychology tech(don't know if that is the right title) the majority of the day. There were literally hours worth of paperwork and surveys we had to fill out while Kendall was being tested so that made the time in t

Hello everyone. I know the last post was long with all of the upcoming appointments so I will try to break them down in smaller posts. The results of the June 3rd Epstein Barr Virus was higher-10,100(from 243, and 4300). She does not have any obvious symptoms that would indicate why her number is that high. No cold, fever, loss of appetite etc.....The plan is to see the oncologist on June18th along with an ENT appointment. -She will also have a PET scan appointment on July 7t

Time flies. Especially when things are not only happening to you but your family and friends also. I didn't look back at the last post so bear with me if this is a repeat of anything. April 17th--Kendall had an appointment with Dr McGrath who is her hematologist/oncologist. Basically she is the specialist that has been following Kendall regarding her enlarged spleen. --On the physical assessment Kendall did not have any signs of pain. The results of the CT scan of her spleen