Today was the neurology testing at a U of M center near the hospital. We were there from 8am-230pm. We were able to talk to the psychologist for about an hour so she could gather information and get more of Kendall's history before she met her. Kendall was with the psychology tech(don't know if that is the right title) the majority of the day. There were literally hours worth of paperwork and surveys we had to fill out while Kendall was being tested so that made the time in t

Hello everyone. I know the last post was long with all of the upcoming appointments so I will try to break them down in smaller posts. The results of the June 3rd Epstein Barr Virus was higher-10,100(from 243, and 4300). She does not have any obvious symptoms that would indicate why her number is that high. No cold, fever, loss of appetite etc.....The plan is to see the oncologist on June18th along with an ENT appointment. -She will also have a PET scan appointment on July 7t

Time flies. Especially when things are not only happening to you but your family and friends also. I didn't look back at the last post so bear with me if this is a repeat of anything. April 17th--Kendall had an appointment with Dr McGrath who is her hematologist/oncologist. Basically she is the specialist that has been following Kendall regarding her enlarged spleen. --On the physical assessment Kendall did not have any signs of pain. The results of the CT scan of her spleen

Hello everyone. I can't believe it is April already. Sydney turned 32 last week and Kendall will be 17 yrs old on April 17th!!!!! She absolutely loves singing and karaoke(this is when she is the happiest). We have planned a karaoke party for her on Saturday. For now keeping it as a small group due to her immune system. She had a cardiology appointment today. EKG and ECHO(ultrasound of the heart) was stable. Also had a ton of blood drawn for cardiology and oncology. ( I coun