Shaking my head(sums it up)

Good morning everyone. We did not get the biopsy report back last week. The oncologist called us on Monday to give the report. There are cells in the lymph nodes that are an "early" version of PTLD.(polymorphic PTLD) if you want to read more about it.

The plan is s follows:

Since it is an early PTLD and has not spread anywhere else, Kendall will get an infusion every week for 4 weeks. The medication is called Rutuximab. She had this medication last time along with chemo.

The doctor is optimistic that this medication alone will take care of the "B" cells that keep multiplying and are causing all of this. It is also related to her immune system not being strong enough yet to fight this off. This EBV virus is what gets out of control and irritating the lymph nodes so much and this is how it shows up.

No chemo is planned.

The first infusion is tomorrow. Process is -get blood drawn, doctors appointment, infusion, home.

After the last infusion(in 4 weeks) she will have another PET scan to verify her lymph nodes are clear

Of course this is not the news we wanted to hear. I just can't believe this is happening again. It clearly sucks!!!! I will be so glad when we get to a point where this isn't so familiar and we get to say "remember a long time ago when..."

I have to leave you with positivity though.

1-She did it before and she will be strong enough to do it again.

2-Thankful that it is not chemo

3-It was caught early and has not spread anywhere else

4-She does not have any symptoms

5-She has the best attitude

6-She is not admitted into the hospital

7-The more she goes through, the stronger her testimony will be and others will believe in God and miracles through her life

8-She has a loving family and the best team of supporters that help her get through everything she endures

Love you all

xoxoxoxoxoxoxoxoxo

#TeamKendall